I visited Mikko in the ICU yesterday. I took a few pictures of the intense machinery (not of him, though!) they had supporting him, but it was pointed out to me that perhaps I shouldn't share them. There is a point there. The point, as far as I am concerned, is not so much the idea that we should hide what is happening, but rather, that Mikko can decide for himself, whether or not he wants the itty-bitty details of what meds he is on and what his heart-rate was available publicly.
fon @ 4:35 PM link to post * *
Two weeks ago, a light appeared at the end of the tunnel. He started electroconvulsive therapy (ECT) a week ago. It was doing wonders, combined with the one-off ketamine injection that he received a week and a half earlier. It really looked like things were looking up.
On Sunday night we were still cordially joking around about the ECT. "Why did they wait so long before electrocuting me," he asked. He managed a smile for the first time in months. "I hope I don't catch whatever the kids have," he said, referring to the gastroenteritis our monkeys were down with. "I probably can't go if I am vomiting."
But he wasn't vomiting. We figured we adults are somehow immune to this one. You know, it never occurred to me to ask what the reason is for the instruction to not eat before anesthesia. But now I know. The point is one can vomit when one wakes up, and after anesthesia, one's gag reflex is impaired. So now he is down with aspiration pneumonia having displayed the first symptoms of the gastroenteritis immediately upon waking up from the ECT.
I am not too worried about him not waking up from his medically induced sleep. I am sure he will, and I am sure he will be better. Physically. I have no idea what this means in terms of the ECT treatment. It is supposed to be several consecutive treatments. He'd be due for his next treatment today. And his fifth one on Friday. Then his final one next Monday.
I worry this means he will have to start over. Knowing him, it may throw him into a deeper and darker depression yet. Dark thoughts cross my mind. Have you ever watched the movie Final Destination? It's like his depression is meant to kill him, one way or another. It's like we can't escape fate. But f*#k that. I don't believe in fate. We make our own path.
For now, I just need to stay strong. I need to not get too irritable at the kids. I need to remember that while they accept that their dad is away (they are kinda used to it), they really need me. In November I told the kids I am visiting the doctor, and my 7-year-old daughter's reaction was, "are you also going to stay at the hospital, Mommy?" That damn near broke my heart.
Now I am going to the doctor in secret. They don't need to know I will (probably) be on stress-related sick leave. Then I will go see Mikko at the hospital. All the kids need to know is that I will be here for them, and that I went to see Daddy at the ICU and that he is (hopefully) ok. I have no idea if this is how I am supposed to go about this. I have no idea where I am supposed to turn for answers. Perhaps someone reading this has experience? Well.... if not, my closet is a great listener!
fon @ 2:38 PM link to post * *
A few years ago I put on a huge suit of armour & I started lashing out from inside my hard case every time I had a chance. I've said & done some stupid $#*¡ cos I have been alone & convinced nobody is listening, anyhow.
The past few years have been a mire of guilt over anger, anger over guilt, guilt over being a terrible failure in life, guilt for getting angry, anger at not being able to stand up for myself, anger at feeling so terribly lonely, and finally, complete helplessness because I couldn't stand up for myself. And oh - the panic attacks that left me shuddering on the floor every time certain topics of discussion came up with certain people.
But in helplessness there is hope. In my firm belief that almost everyone was against me, I asked for help from a professional (or two). It took a couple years, but at the end of it all, I realised one important thing: Heavy armor may protect you from blows, but it also prevents you from moving forward.
It took a few years, and I made a choice I was sure I would receive plenty of criticism for. I decided to leave the armor & dodge the blows instead.
In other words I learned to put my foot down. I have learned that it doesn't matter if there are people who think I am worthless. I can choose not to listen to them. I learned that people can be unhappy about my decisions, but that I don't have to pander to anyone.
I learned that I don't have to indefinitely stay out of my comfort zone so that others could stay comfortably in theirs. And yes, it was met with lots of criticism.
But... leaving all that armor behind has also made it possible for someone to ask me how I am, and what's going on in my life. Not possible when you are surrounded by a fortress.
Small-talk, right? But in the right context, that is the most profound question a person can ever ask you.
Thank-you for asking. Thank-you for listening. I feel much less alone.
Labels: caring, closure, psychology, self-esteem, thanks
fon @ 11:54 AM link to post * *
The first moment was when I was 16, and my employer, Nina, told me that she was worried about me. That’s it - that’s the moment that chokes me up now. Some time after that, my life did enter a very dark phase, which makes it all the more poignant to me that she saw what a precarious position I was in.
The second ‘moment’ I remember is really a series of warm moments, when I befriended Olga, who, by choosing to be my friend, shone a light down a new path for me.
I can say with certainty, that these two women, without intending to, both saved my life.
Labels: Amigo Nuorten Mentorointihanke, Helsingin Diakonissalaitos, mentoring, volunteering, youth
fon @ 3:15 PM link to post * *
Labels: children, espoo, ethics, first grader, nutrition, politics, school, school meals, vegan, vegan food, veganism
fon @ 4:28 AM link to post * *
My job involves me working with a lot of people - volunteers - who come in for an interview and tell me about themselves. I love this aspect of my job. I love to hear people's stories. And I really love to hear about what motivates people to spend their free time volunteering. One day, if I write a book, I'll be able to tell you a lot about what motivates people to do what they perceive to be good deeds.
I stress the what they perecive to be good because it is crucial, for even the do-gooder, to make a few choices.
One important thing we do when interviewing volunteers is try to get some insight as to where their comfort zone is. Where would they like to direct their positive energy? Who is it, exactly, that they would like to help? We do just simply ask, but it is a trickier thing to discern than one would expect.
You see, most people claim to be totally open-minded. It seems to come with the territory of being a person who wants to help those who are 'worse-off' than they are. It goes with the do-gooder's self-image. To some extent, most of us have been raised with a notion that there are people who are socially worse off. Those people at society's margins, we are told, are the people who we should always remember when we count our blessings. 'They' are less fortunate. 'They' are to be pitied. 'They' are there somewhere, and we personally know very few of them. It is, however, the idea that they are in some way or another, a less fortunate version of ourselves that makes it imperative that we are also extremely open-minded towards them.
Herein lies the dilemma. We have a foggy notion of who 'they' are, and we are, indeed, totally open-minded and non-judgmental towards 'them'. It's when 'they' - those who are worse off - are not at all who we think they are, and yet we are asked to help them, that we suddenly get an urge to define who is in need of help, and who is not.
And who are these marginalized masses? We've all been told different things:
'Some people were not so lucky to have been born in a democratic country.'
'Some people have no friends.'
'Some people don't have parents'
'Some people don't have food.'
'Some people are not entitled to social welfare.'
'Some people can't get an education.'
...can't afford to buy new clothes
...can't afford a house
...live in places where they have no rights
...have drug addicts for parents
...don't have a job
...haven't been taught the rules
The list is endless.
Many of these things are objectively true, and help us in helping our children form a worldview. My own kid took part in a Unicef walk recently. In explaining what the walk was for, we explained that it was to raise money because some children do not go to school in good conditions. For example, not all schools have enough teachers. Some schools do not have conditions that are safe for children.
Did I say this notion of the socially marginalized was foggy? Yes - but it's more like the fog at Point Reyes. Foggy, yes, but more or less a permanent fixture. And that's because it is instilled in us at such an early age that it is difficult to question it any more. Thus, challenging those notions of who is deserving of help can often be a direct assault on a person's identity.
Then there are the people who are 'those people', who also feel that they can contribute. And indeed, they should! There is plenty of research that shows the 'monkey-see-monkey-do' principle is correct. We are more likely to copy people who we see as similar to us, and to listen to the advice of people who have similar experiences to our own.
And these people also own a definition of what it means to be 'marginalized'. Some claim such a strong ownership over their marginalization that it is difficult to see how others could also be experiencing difficulties. And some still have a very strong notion of who is not marginalized, of who is living the ideal life which they themselves can never hope (and definitely don't want to) obtain! I think, that to a certain extent, we've all been exposed to that from an early age, too.
'I wouldn't want to be famous - I would always be exposed to the paparazzi'
'I don't think I'd know what to do with 10 million dollars... would I just become greedy if I won the lottery?'
or even simply 'They are married, have two kids, a house, a car, a dog.'
We are blind to the suffering of those we see as having some aspect of an ideal life that we ourselves would like to achieve. After I had given birth, a friend who very much wanted a child once said to me: 'I was angry at you for being sad, because you have a child, and you go visit your family in Thailand once a year. I didn't think of it from your perspective. You are lonely because you are at home with no adult company and you miss your family in Thailand the 11 months you are in Finland.'
My friend was exceptional in her ability to see the other side. Most often, people simply reject the other's suffering - 'I don't think they really have any problems' is a frequently heard phrase, and its more self-effacing twin 'I don't think I am able to offer them anything.' No problem, we'll chat about it and perhaps you'll see the other side, or perhaps you'd rather direct your energy elsewhere!
Or, conversely, some people are able to feel, all to well, the pain of others, and feel guilty about not being able to do enough to help. Sometimes, one does have to choose, and sometimes one gets defensive about their choice of who to help.
My message is simple: There is no need to rank the suffering of others, or to feel guilty for not helping everyone who reaches out a hand. If you don't know which 'good thing' you'd like to do just know that it's OK to do just one good thing. If you volunteer at a shelter for homeless cats, it's fine to let someone else buy the Big Issue from the homeless person. If you take a lonely granny out for a walk after work, let someone else play with the child who's been taken into custody. When 'doing good' just like with everything else in life, make sure your heart is in it, and don't spread yourself out too thin.
Luckily, we've all been taught slightly different things about what kinds of causes deserve our attention, so I honestly do believe that there is a champion out there for everyone who needs a hand.
fon @ 2:47 AM link to post * *
Yesterday, I had a 'Eureka!' moment. I realized I can do more to help around my community and it would also be a lot of fun for me and my kids (ok, I admit I didn't consult dd on this). In Espoo, it is possible to sign up to become a volunteer 'support person' for families with children. A support person caters to the needs of a family in need of support. Tasks can range from looking after the kids of a single mom for a few hours so she gets a bit of breathing space to helping kids with their homework to making sure the parents get bills payed on time. My own kids are very social, and always want new play mates, so I figured, what the heck, the more the merrier - if there's a family that needs some time off from their kids around here (especially immigrants who don't have family in Finland who could help out sometimes) it's no biggy for us to entertain a few kids for a few hours. We practically have a swinging door at our apartment, anyhow!
Espoo outsources their support person services to an NGO. I got in touch with them, and this was the answer:
"Unfortunately our volunteer work as a support person requires that you speak Finnish because most of the families seeking help are Finnish. Especially children in the families speak Finnish. In order to communicate with them you should be able to speak Finnish. ... If you are able to speak Finnish you are most warmly welcome to participate."
I remember, when I worked as an interpreter, these services were sometimes offered to Thai women. Their first question was usually, 'Does the person speak Thai?', to which the social worker would answer, 'Unfortunately not - they speak Finnish.' I had the same experience in Saimit. Many Thai women asked if we had Thai mentors for them. The experience is repeating itself in Amigo right now. Some immigrant youths are asking whether we have someone they can talk to in their own language, or at least not Finnish all the time.
So, where is the gap? There is a need for services in one's own language, and there is a will to help in languages other than Finnish. But there is also some kind of idea that not speaking Finnish is automatically a problem.
The formula for eligibility for both social workers and for this particular NGO appears to be something like this:
X + Y = 'Action'
where
X = Desire to contribute
AND
Y = Need for support
If foreign language is thrown into the mix, it is a 'zero multiplier'
No Finnish * (X+Y) = 0 * Action
As far as I can tell, this creates a situations where A) human resources are wasted, and more importantly B) People who are genuinely in need of support would rather do without it, as it can be cumbersome to discuss sensitive personal matters while struggling to express them in a weak second language.
Of course, I do understand that it is important to learn a second language when integrating into a new country. But let's not mix up two separate needs here: One is the need to solve social or psychological problems (lack of access to services, lack of time, unresolved traumas), and the other is the need to learn a language in order to integrate into a new country. Learning the language will help you access services, but it won't help you resolve the other problems. And the question remains - should you only be allowed to access social services after you've learned the language, and not before?
As early as the 70s, psycholinguistic research (Marcos, 1976) found that while it may be easier to talk about your problems in a foreign language (without having a meltdown) it is much more difficult to address the roots of the problem in one's own language. Nothing has changed.
One NGO in particular, Nicehearts, with their 'Naapuriäiti' model, does an excellent job using research in the field of integration in their decision making process. The question is, why doesn't the state?
Another factor to consider is the group of foreigners who come to Finland on a work visa. In general, businesses take very good care of them. And they do not need to learn Finnish. So the consensus is that foreigners with a paycheck will be served in a manner and language convenient for them. Foreigners without a guaranteed paycheck upon arrival shall be given whatever treatment is convenient for the service providers. This kind of discrimination would be fine in a country that doesn't promise equal access to services for all people. But this is Finland - a social democracy that explicitly promises equality of access. I live in Espoo, so I took a peek at the Espoo City website.
The city of Espoo has a Equality Committee, and their page explicitly states:
"The Act on Equality between Women and Men and the Non-Discrimination Act oblige all officials of Espoo to promote equality and non-discrimination in all of their activities."
Nowhere does it say: "But only in Finnish".
But that seems to be the general attitude. I find it deeply disparaging that the current social model only seeks to include foreigners if a) they have a paycheck or b) if they want to speak Finnish, both on the volunteer and the support side.
At my work place (Helsingin Diakonissalaitos), we run a volunteer programme where the philosophy is that anyone with the will to participate in civic activities should be included and empowered. The need to help is as real and urgent as the need for help, and perhaps I am speaking for myself, but we tend to think that both factors are equally important should be in balance. Maybe that's why we are officially called the Community Programmes, as opposed to Volunteer Programmes.
Our formula looks something like this: X + Y = Z or 'Urgency of action.'
Where:
X = Strength of desire to contribute
Y = Urgency of need for support
where X and Y are roughly equal
The action taken is a sum of the urgency of action + the result of variables A, B, C. So the result should be something like this:
Z + (A*B*C) = Action taken.
'Language of operation' is one of those variables, and not the 'zero multiplier' that makes the equation an impossibility.
Having those 'zero multipliers' that create hurdles in access to services is a big problem in a service model that promises equitable access. Having those 'zero multipliers' means that services are inaccessible to certain groups. It does not mean that those groups do not exist. City of Espoo: Your failure to reach out to these groups is in direct violation of the Non-Discrimination Act.
My vote is going to the party that addresses these issues!
Just sayin'.
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Labels: city council, discrimination, equal access, espoon kaupunki, language, vaalit, volunteering
fon @ 3:07 PM link to post * *